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Tuesday, May 5, 2015

You, and Me, and a Mutant Named Toots

Epilepsy...
Strange moments we'll never remember in this life or the next. Strange moments we'll remember, and not fondly. Then there's those unexpected bursts of sunshine. Support from strange places. The dark, gallows humor that develops. The very silly humor that develops. At the beginning, I took the myriad doctors' appointments with seriousness. I'd never snark at a doctor- heavens no!
  Or remark, in a very serious, dramatic tone, to the EEG tech, "And now, the mummification procedure commences". I wouldn't have been ready in 2004. The snarker in 2015 who has a giggle when looking out the window during a very long wait, and spies a lit up sign at a nut factory next door, and lo and behold, it reads, "Nuts are our business."- I wouldn't have gotten it, then. I wasn't ready. I was serious. I was 21 and wanted to go outside and play and this weirdo with the fake Texas accent telling me that I couldn't marry or have children, and later, more... Well, for a little while, I took him seriously. I became depressed. I did things I shouldn't. But gained as well as I lost. I thought I was a bad, worthless, person who was hard to love. I had been injured, I hurt, and rather than helping, I was getting lectured and frightened out of my wits! And that doesn't help with episodes.

But ah, the good! The good outnumbers the bad. I learned to speak up for myself. I learned not to let others make my medical decisions for me. I learned to walk out when treated like I was less than crap. How dare I be sad, scared and frustrated? Be a good girl, we know best!

Realizing that I'm capable. That I do have a mouth on me and know how to use it. That I've survived and bumped up against things some would find too difficult. That opening my mouth and replying "Watch me!" When the dreaded words, "You can't" came along. (I might have been accidentally inspired by former PM of Canada, Pierre Trudeau. I'll be pirouetting behind a beloved figure of state next. Beth, be careful on the stairs, there's a knob at the end--- ooh!)

I felt like a mutant. As in, X-Men. 

I  asked how I thought I was a mutant,some time last year. I thought about it. It's not much.

  • Can, in a pinch, substitute as a space heater
  • It can hurt like Hades, but I have survived things people think are impossible. And I came out, snarking. 
  • I present as a mystery to friends and family. I realize now, it must not be too terribly difficult to love me, attitude problem and all.
Hair and nails grow at a tremendous rate. Not this tremendous, mind.

There's a longer list.

I sometimes have trouble feeling like a human, let alone a lady, but I work at it.
Do I have any magical words of wisdom? Ohh... Toughie. Let me steal from a friend and try, "Don't be sad, be awesome." Yep. I think that works.


From Allegorically Speaking- Thanks! :)





I made my own mutant (just for fun), and, while I think less is more when it comes down to eye makeup, I'm not indifferent to this look. I call this mutant, Toots. Pronounced like a 1940s detective flick.
She's a lady, and she's fiery. She's--- ME! And I am awesome and never allowed to forget it.
One more word of wisdom: (or phrase) You're awesome. Yeah, you. Now, go forth and do that thing.




2 comments:

  1. Saint FacetiousMay 6, 2015 at 4:52 PM

    Ungh, high school with neurological difficulties is nothing great. Nor was college. But at least in college, the doctors would listen to me. Back in high school, my parents just thought I was faking it for attention! Luckily mine is a "mild" case.

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  2. Bethycutiepie13May 7, 2015 at 4:58 PM

    No- high school with any differences of that nature- not fun. And sometimes- it takes a lot of doctors- sometimes to get something like "Well, it's epilepsy". Very good. What are you going to do? :-) I like that you're living, loving and working... Keep it up! :)

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